Downright Joy

Discovering joy in unexpected places – a journey into Down's syndrome, Dyspraxia & Autism

You

7 Comments

I see you, Autistic Man, Woman, Teenager, Child.

My child.

I see you claim your identity.

You wear it proudly, a mark of distinction. Unashamed of who you are.

You are, some say, a person with Autism, but you’re not having that.

You do not shy away from your label, for it is sewn into the very fabric of your being.

Each thread woven together in its diverse and beautiful pattern.

You are happily defined by it. It does not frighten you; neither does it frighten me.

You are fully human.

You are my first born child.

I see

You.

I see you Down syndrome Man, Woman, Teenager, Child.

My child.

I see others decide your identity for you. Defining it and, in so doing, devaluing it.

I see others, myself included, debate your identity. You are not, they say, a Down syndrome Man, Woman, Teenager, Child. My Down syndrome child.

You are, they say, a person with Down syndrome.

And yet..

Your label, your extra chromosome, is sewn into every fibre of your being.

Each thread woven together in its diverse and beautiful pattern.

You may be happily aware of it or, like my child, you may be happily unaware of it.

But you are, I venture to say, defined by it and that should be ok, for Down syndrome is a glorious thing!

It does not frighten you; neither does it frighten me.

If others did not seek to devalue your identity and your worth there would be no need to debate it. People would simply accept it. Accept you.

You are fully human.

You are my second born child.

I see

You.

Author: alisonjane2014

Married. Mum of 2 girls, one of whom has Down's Syndrome. Follower of Jesus. Finding joy in unexpected places.

7 thoughts on “You

  1. Hi, I’d just like to let you know that your post has been featured here: https://optimistjenna.wordpress.com/2021/01/31/january-disability-roundup/

    I enjoyed reading this so much. It comes from a place of clear kindness and acceptance. I love that. My sister has Down syndrome and I love her for exactly who she is, so how could I not love Down syndrome? I hope people will become more enlightened over time and recognize the beauty in disability.

    Liked by 1 person

  2. Such a beautiful post, Alison! This really pulled at my heartstrings. Thank you so much for posting and being a hero!

    Liked by 2 people

Leave a Reply to alisonjane2014 Cancel reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s